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A 13-year-old boy from the UK, Oran Knowlson, became the first person globally to undergo a trial for a groundbreaking epilepsy treatment. The treatment involved implanting a neurostimulator directly into his skull, which has successfully reduced his daytime seizures by 80%.  Oran, who has Lennox-Gastaut syndrome, a severe and resistant form of epilepsy, underwent surgery…

Category: News

Caring for someone with epilepsy is a rewarding yet challenging responsibility. While ensuring the safety and well-being of your loved one is crucial, it's equally important to prioritise your own health.  Caregiver stress and burnout are common among those who dedicate their time and energy to supporting individuals with epilepsy. But how can you manage…

Category: Advice, Education

Living with epilepsy presents unique challenges, not just in managing the epilepsy but also in navigating the healthcare system. Self-advocacy is crucial to ensure you receive the best possible care and support. Here are some practical tips to help you effectively advocate for yourself: 1. Educate Yourself About Epilepsy Knowledge is power. Understanding your epilepsy…

Category: Advice

In the event of a seizure, effective communication with emergency services is crucial for ensuring prompt and appropriate care. Here’s a guide on how to prepare for and handle these situations. 1. Prepare Your Information in Advance Before an emergency occurs, gather and organise all essential information that emergency responders might need. This includes: Full…

Category: Advice

The relationship between hormones and epilepsy is complex and multifaceted. Hormonal changes can influence seizure activity, and understanding this connection can help individuals with epilepsy better manage their condition. Here’s an in-depth look at how hormones impact epilepsy and what can be done to navigate these effects. The Role of Hormones in Epilepsy Hormones are…

Category: Advice, Living with Epilepsy

Yoga, an ancient practice combining physical postures, breath control, and meditation, has been recognized for its numerous health benefits. For individuals with epilepsy, incorporating yoga into their daily routine can offer significant advantages. Here's a look at how yoga can positively impact epilepsy management. 1. Stress Reduction One of the primary benefits of yoga is…

Category: Advice, Leisure