UK Teenager Becomes World’s First Recipient of Neurostimulator Fitted to His Skull to Treat Epilepsy

4th September 2024

A 13-year-old boy from the UK, Oran Knowlson, became the first person globally to undergo a trial for a groundbreaking epilepsy treatment. The treatment involved implanting a neurostimulator directly into his skull, which has successfully reduced his daytime seizures by 80%.  Oran, who has Lennox-Gastaut syndrome, a severe and resistant form of epilepsy, underwent surgery…

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Category: News

New Sodium Valproate Measures Announced by the EU

4th April 2024

Valproate prescriptions for men with epilepsy are now subject to precautionary measures across the European Union (EU), as announced by the European Medicines Agency (EMA). These measures align with the guidelines set by the UK's Medicines and Healthcare products Regulatory Agency (MHRA) but are comparatively less stringent. In the UK, individuals under the age of…

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Category: News

Exploring Virtual Reality Therapy for Epilepsy: A Promising Frontier in Seizure Management

28th March 2024

Living with epilepsy involves navigating a complex landscape of treatments and strategies to enhance overall well-being. In recent years, innovative approaches have emerged to complement traditional therapies. One such promising frontier is Virtual Reality (VR) therapy, offering new possibilities for managing epilepsy and improving the quality of life for individuals dealing with this neurological condition.…

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Category: Living with Epilepsy, News

The Role of Genetic Testing in Epilepsy Diagnosis and Treatment

17th October 2023

Epilepsy is extremely complex with a diverse range of causes and manifestations. While some cases of epilepsy are linked to identifiable factors, others appear to have a genetic basis. Genetic testing has emerged as a valuable tool in understanding the genetic underpinnings of epilepsy, providing insights into diagnosis, treatment options, and personalised care. In this…

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Category: Living with Epilepsy, News

Exploring Vagus Nerve Stimulation (VNS) as a Promising Treatment for New-Onset Refractory Status Epilepticus (NORSE)

29th June 2023

In the realm of epilepsy, the management of new-onset refractory status epilepticus (NORSE) poses unique challenges. However, a promising avenue of research has emerged, focusing on the potential of Vagus Nerve Stimulation (VNS) as a novel treatment option. This blog post delves into recent research that investigates the application of VNS in NORSE, shedding light…

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Category: News, Treatments

NHS Set to Offer ‘Life-Changing’ New Laser Therapy to Epilepsy Patients in the UK

24th January 2023

The National Health Service (NHS) in the UK has recently announced that it will be offering a new form of laser surgery for epilepsy patients. The procedure, called epilepsy laser ablation, uses laser technology to destroy abnormal brain tissue that causes seizures. This is a newer, more advanced version of a traditional surgical procedure called…

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Category: News