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With the COVID-19 pandemic still ongoing, many carers have had difficulty understanding the best way to help their patients with epilepsy. New recommendations have been drawn up by a team of international epilepsy specialists, led by Professor Ley Sander.  The report, which was published in the journal, Neurology, has outlined a series of guidance aimed…

Category: Living with Epilepsy

Rett Syndrome is a genetic syndrome that is estimated to affect just 1 in every 10,000 to 12,000 girls. It is extremely uncommon for males to be affected by Rett Syndrome, however, on the rare occasion that it does it’s always far more severe than it is in females.  Rett Syndrome is caused by a…

Category: Syndromes

Rasmussen syndrome is very rare and it is thought to only occur in 1 in 750,000, although an exact figure is not yet currently known. This particular syndrome usually affects children between the ages of 6 and 8, however, there have been instances where a diagnosis has been made in children as young as 2…

Category: Syndromes

Tuberous Sclerosis Complex (TSC) is a rare genetic disorder that affects multiple organ systems and causes tumours to develop in different parts of the body. These tumours are mostly benign (non-cancerous), and commonly affect the brain, heart, kidneys, eyes, lungs and skin. TSC affects 1 in every 6,000 people and can present at any age. …

Category: Syndromes

COVID-19 has affected many businesses and resulted in the need for many to adapt in order to continue providing services. At National Epilepsy Training, we are committed to providing the same high levels of service for both our care and training services regardless of the situation. Our clients deserve and need nothing less from us…

Category: News

Much of the country is currently taking social distancing measures with many more completely isolating in an attempt to slow the spread of the coronavirus outbreak, COVID-19. Whilst isolation has implications for everyone in the general population, there are a few extra considerations that people with epilepsy must take into account.  Here’s some advice on…

Category: News