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Stigma in epilepsy can mean a number of things, whether it’s people believing untrue myths, people being disqualified from activities they feel they could take part in or simply just being treated differently due to having epilepsy.  Stigma and discrimination take many forms. A common example might be children being left out of school activities…

Category: Education

Ohtahara syndrome, also known as early infantile epilepsy encephalopathy with suppression bursts, is an extremely rare syndrome that starts in very young babies, usually below the age of 3 months.  In the vast majority of cases, the baby will have a structural brain abnormality to which this syndrome can be attributed. These abnormalities can be…

Category: Syndromes

Genetics factors affect everybody, these are attributes that are inherited, passed down from one generation to the next. As science and medicine advances, we constantly understand better the role that genetics can play in epilepsy.  It’s important to note that although some types of epilepsy are inherited and known to run in the family, some…

Category: Education

A heartwarming story hit the news recently after a viral social media post highlighted that there are 1200 cases of SUDEP in the UK alone (sudden unexplained death in epilepsy) per year, which is 3 people every single day.  The Twitter thread, which can be seen here, was posted by Hari Miller after she inherited…

Category: News

We recently wrote about the EU approval of Epidiolex, but things seem to be moving quickly and since then two medications have been approved for use by the NHS in England. This follows guidance from the National Institute of Clinical Excellence (NICE) which looked at the product thoroughly and assessed its suitability based on several…

Category: News

Groundbreaking research has found that the brains of children with severe epilepsy can remap themselves to regain functionality following surgery. This has been seen in a number of cases where the brain has changed to compensate for missing regions that have been surgically removed, particularly in the visual cortex.  A joint study between York University…

Category: News