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Unfortunately, there are still many cases where epilepsy is undiagnosed. Most recently, earlier this month there was a high profile case where 29-year-old actor, Amii Lowndes, who has appeared in Doctor Who and Skins, died from undiagnosed epilepsy. Amii’s death was caused by sudden unexpected death in epilepsy (SUDEP).  Back in 2019, actor Cameron Boyce…

Category: Living with Epilepsy

With the COVID-19 pandemic still ongoing, many carers have had difficulty understanding the best way to help their patients with epilepsy. New recommendations have been drawn up by a team of international epilepsy specialists, led by Professor Ley Sander.  The report, which was published in the journal, Neurology, has outlined a series of guidance aimed…

Category: Living with Epilepsy

Within reason, there are very few jobs that should be off-limits to people with epilepsy. An employer can not legally use your epilepsy as a reason to not give you a job. It is also important that employers are willing to make reasonable adjustments to accommodate you should they be needed.  There are however a…

Category: Living with Epilepsy

In July 2019, young actor, Cameron Boyce tragically died in his sleep as a result of SUDEP (Sudden Unexplained Death in Epilepsy). Cameron was known for his roles in a number of Hollywood films and TV shows, including Grown Ups, Descendants and Jessie.  Of course, within the epilepsy community SUDEP is not new. However, the…

Category: Living with Epilepsy, Syndromes

It’s crucial that children with epilepsy have unrestricted access to an education and quite often this might mean that some adjustments need to be made within the school. It may be that special considerations need to be made to ensure the child’s safety whilst they are in school.  School can be a stressful time for…

Category: Education, Living with Epilepsy

There are approximately 20,000 people in the UK who have photosensitive epilepsy. At present, there are guidelines on warnings for films and TV to warn those who may be affected by flashing images. However, there have been recent calls that the government needs to do more to safeguard people who are watching videos online. There…

Category: Living with Epilepsy, Seizures